Links We LIke
December 18, 2013: Frequently asked questions addressing lifespan planning for family members with autism.
September 20, 2013: TSA Website outlining procedures and providing resources for special needs travelers. Autism-specific information is included through an embedded link. Includes discussion of procedures when traveler cannot be separated from companions during screening.
August 30, 2013: Safety product list from Autism Speaks. Many of the items are designed for children, but the list does include items for use with adults who wander.
August 23, 2013: A product that works as a fidget, has sensory integration value AND is made by adults with learning disabilities. We love Aaron’s Thinking Putty.
August 9, 2013: Writer and autism advocate Laura Shumaker shares ideas from parents on motivating autistic teens and adults to exercise in her SF Gate blog.
July 12, 2013: The National Housing and Residential Supports Survey from Autism Speaks seeks to quantify and characterize the housing needs of individuals, adolescents and adults with autism in the United States. It is designed designed for individuals with autism ages 14 and older and their caregivers. The survey will take approximately 10-15 minutes to complete.
June 21, 2013: Autism Speaks National Conference for Families and Professionals will be held in Columbus, Ohio on July 26-27. Includes a focus on care across lifespan.
June 14, 2013: "Paying for Finn: A Special Needs Child" is a compelling article written by autism dad Jeff Howe. Published in April in CNN Money, Howe's essay takes a hard, honest look at what it costs to care for a child with special needs across lifespan.
June 7, 2013: "Trastornos del espectro autista" is the Spanish-language resource page from the Centers for Disease Control and Prevention (CDC). It contains both data and lnks to resources in Spanish.
May 24, 2013: "Priced Out in 2012," a report released by a Boston-based nonprofit, examines the relationship between housing costs and SSI payments for non-elderly adults with disabilities. The group, Technical Assistance Collaborative (TAC). is a national nonprofit organization that seeks solutions to the housing and community support services needs of low-income people with disabilities and people who are homeless. The report found that in many markets, the cost of a one-bedroom apartment was over 100 percent of monthly SSI income.
May 17, 2013: The website of the National Autism Network organizes the Internet as it pertains to autism spectrum disorders providing both families and providers with a single source to get the latest information. The site includes the largest collection of autism related articles, hundreds of pages of information on diagnostics, early intervention, treatment models, education, evidence-based practice, and legislation along with discussion forums allowing parents and professionals to connect on an unlimited number of subjects, online seminars/webinars on various subjects and provider directory with over 34,000 providers.
May 10, 2013: In celebration of Mother's Day! "Five Reasons Why Autism Moms Rock," is a 2011 Psychology Today post by Kymberly Grosso.
May 3, 2013: For those interested in ratcheting up their chef's skills, the article, "Attention Future Top Chefs: Cooking School Goes Online," in Bloomberg Business Week takes a look at how culinary training programs and cooking classes are now readily available online. Links are included.
April 26, 2013: The "Housing and Residential Supports" Toolkit from Autism Speaks provides an overview of how to begin to look for housing options for an adult with ASD. It explains different models of residential support and also address how to seek funding.
April 20, 2013: "Art Therapy" from our friends at Real Look Autism is a lovely video of a 14-year-old boy, Conor, working with his art therapist. Conor's mom, Alisa Rock, writes a wonderful blog called Autism Experience.
April 12, 2013: "Life and Love: Positive Strategies for Autistic Adults" is an extremely useful and accessible book by Autism After 16 contributor Zosia Zaks. Zaks provides specific ideas for navigating social interactions, both private and professional.
April 5, 2013: The ARCH National Respite Network and Resource Center is an organization dedicated to helping families find caregiver support. It includes a searchable database as well as resources regarding best practice and funding options.
March 29, 2013: SF Gate blogger, Laura Shumaker takes a look at apps in "Autism and the iPad: Choosing Apps for Teens and Adults," posted in September. She collected suggestions from her son and from her Facebook forum.
March 22, 2013: "Funding Resources for Speech-Language Pathology Services" is a page in the website of the American Speech-Language-Hearing Association. Make sure to click on the links in the box on the right-hand side, which includes state, federal, and local resources.
March 15, 2013: The journal article, "Comparisons between Individuals with Autism Spectrum Disorders and Individuals with Down Syndrome in Adulthood," appeared in the American Journal of Intellectual and Developmental Disabilities in July 2010. The study examines the differences in indepedence in 70 adults with ASD compared to 70 adults with Down Syndrome and concludes that "Even in comparison to adults with significant disabilities, the life skills of adults with ASD are severely lacking."
March 8, 2013: In "Services and Outcomes for Youth with Autism" researcher Paul T. Shattuck of Washington University in St. Louis summarizes his research regarding service access by young adults with autism, before and after leaving high school. He analyzes data regarding post-high school employment and education, revealing unmet service needs and a socio-economic gap in outcomes.
February 22, 2013: The Autism Research Institute's article, "Sensory Integration," contains an overview of the sensory system and sensory integration. It includes a video presentation as well as links to external resources.
February 15, 2013: The Job Accommodation Network (JAN) website provides a great deal of information on workplace accommodations and disability employment issues. There is information for both employees and employers, including discussions of ADA and its amendments.
February 8, 2013: "Life Skills Program Planner" is a document from the Grand District Erie School Board and provides and overview of teaching life skills as well as a guide to creating task analyses.
February 1, 2013: "Tests and Measurements for the Parent, Teacher, Advocate and Attorney," is a resource-filled article by Wrightslaw founder Pete Wright. A thorough read will help you understand how standardized tests function and how they are used in developing IEPs.
January 25, 2013: This Life Skills Inventory from the Washington State Department of Social and Health Services is a very detailed checklist of important skills for living independently. While this is not specifically intended for youth with developmental or intellectual disabilities, it provides a good frame of reference for thinking about the complexities of living independently.
December 21, 2012: CURE is an organization founded by parents of children with epilepsy. While the organizaiton's mission is to advance research, the website also contains information about epilepsy and resources for families living with it.
November 9, 2012: To learn more about the Affordable Care Act, visit HealthCare.gov. The site includes a list of key features of the law, a timeline of implementation, as well as personal stories to help illustrate the law's application.
November 2, 2012: The Gluten-Free Resource Directory from the Celiac Disease Foundation. Extensive listing of product links. Everything from baked goods to travel sites.
October 19, 2012: "Developing Talents: Careers for Individuals with Asperger Syndrome and High-Functioning Autism," by Temple Grandin and Kate Duffy shares ideas on how to develop job skills from interests. It also addresses how to acquire skills to become more generally employable.
October 12, 2012: The National Forum on Disability Issues was a nonpartisan event, focusing on the disability positions of the 2012 Presidential candidates. Edward M. “Ted” Kennedy, Jr. and Rep. Cathy McMorris Rodgers (R-WA) spoke on behalf of their respective parties to present their campaigns’ positions on matters relating to Americans with disabilities. This website contains access to both video of the webcast and transcripts.
October 5, 2010: " The Down Syndrome Transition Handbook" by Jo Ann Simons is intended for parents of young adults with Down Syndrome, but the information and insights have applicability to anyone with a developmental disability. Simons discusses legal and emotional issues, as well as family dynamics.
September 28, 2012: "Autism and Mental Health Issues" is a publication of the Center for Autism and Related Disabilities at the University of South Florida. The guidebook provides an overview of autism and mental illness, as well as a list of resources, both in Florida and nationally.
September 21, 2012: Wrightslaw's "From Emotions to Advocacy: The Special Education Survival Guide," written by Pam Wright and Pete Wright provides a comprehensive overview of how to begin advocating for your child within the public education system. This book will help you better understand federal special education law as well as arm you with tools to function as your child's advocate.
September 14, 2012: "The Affordable Care Act: What Disability Advocates Need to Know" is a document published by The Arc. It contains analysis of the Affordable Care Act in an accessible question-and-answer format and focuses on the needs of people with Intellectual and/or Developmental Disabilities (ID/DD).
September 7, 2012: Wrong Planet is a web community of autistic adults, family members and professionals. The site contains a discussion forum in which members can interact and connect.
August 31, 2012: "The Hoosier Orientation Handbook on Supported Employment" is a publication of Indiana University's Center on Community Living and Careers in conjunction with Indiana's Vocational Rehabilitation Services office. While it is intended for staff training, it provides an overview of supported employment that families may find useful.
August 24, 2012: "What is Executive Function?" is a page from the National Center for Learning Disabilities website, LD.org. As students get ready to head back to school, it may be useful to review strategies to help with organization, memory, and impulse control.
August 17, 2012: Stopbullying.gov is a federal government website managed by the U.S. Department of Health & Human Services. It covers a variety of topics, including providing information on federal laws which may apply. Although there is no federal law addressing bullying per se, according to the site, "bullying overlaps with discriminatory harassment which is covered under federal civil rights laws enforced by the U.S. Department of Education (ED) and the U.S. Department of Justice (DOJ)."
August 10, 2012: "What FERPA Means for You and Your College Student" is a page provided by College Parents of America to help you understand the The Family Educational Rights and Privacy Act of 1974. If your son or daughter is headed to college this fall, it is important to understand how your student's right to privacy might impact support needs.
August 3, 2012: First published in 2008, Animal-Assisted Interventions for Individuals with Autism (by AA16 editor Merope Pavlides) provides an overview of service, therapy, and companion animals in relationship to autistic children and adults.
July 27, 2012: On its Adults and Adolescents page, Virginia Commonwealth University's Autism Center for Excellence provides links to research by VCU faculty, as well as external resources. VCU is a a leader in research on vocational programming for adults with autism.
July 20, 2012: In "Next Stop," Glen Finland shares her family's story of a son with autism traveling toward adulthood. In a March 2012 Washington Post interview, Finland discusses how to help autistic adults become more independent.
July 13, 2012: "Fly Away" tells the story of a single mother, played by Beth Broderick, who must decide how best to meet the residential and care needs of her autistic daughter who is transitioning to adulthood. Strong performances by Broderick and Ashley Rickards as the daughter, Mandy.
July 6, 2012: College on the Spectrum is a website maintained by Sarita Freedman, author of "Developing College Skills in Students with Autism and Asperger's Syndrome" (Jessica Kingsley Publishers). This a good read for parents as their children hit Transition to help think about how to move forward into postsecondary education.
June 29, 2012: AA16 editor Merope Pavlides shares her experience at the Autism Speaks Employment Think Tank on Autism Speaks' Official Blog.
June 22, 2012: The Council of Parent Attorneys and Advocates is a resource for finding support in Special Education advocacy. The website includes a search engine to find attorneys and advocates in your area, as well as access to resources and trainings.
June 15, 2012: Diane Rehm interviews author Buzz Bissinger on his book "Father's Day: The Journey into the Mind and Heart of My Extraordinary Son." Bissinger's son has an intellectual disability which resulted from birth trauma. Bissinger is the author of "Friday Night Lights."
June 8, 2012: This First Responders Information from Autism Speaks provides guidance to families to prepare for emergencies and to share with emergency personnel to better help serve the child or adult with autism.
June 1, 2012: The National Guardianship Association, Inc. creates standards and provides information on guardianship. The website includes Questions and Answers, Rights of an Individual Under Guardianship, and Guardianship and Developmentally Disabled Individuals.
May 25, 2012: Joshua Muggleton has Asperger Syndrome, and is currently studying Psychology at the University of St Andrews in Scotland. He is the author of a new book, "Raising Martians: From Crash Landing to Leaving Home," published by Jessica Kingsley. This link contains information on his book and a short video on college for ASD students.
May 18, 2012: Autism Employment Resources Facebook Page is a new page created and monitored by Scott Standifer of the University of Missouri's Disability Policy & Studies. Links to Standifer's work, such as this Fact Sheet on Autism Employment can be found on this page.
May 11, 2012: Simons Foundation Autism Research Initiative (SFARI) is a research program of the privately-funded Simons Foundation. The SFARI website provides news and information regarding scientific and social science research, as well as analysis of some of the studies. This is a dense website with a great deal of scientific information, but worth spending time with.
May 4, 2012: "Occupational Therapy: Shaving" from Real Look Autism.
A video demonstrating how an autistic teen overcame sensory issues and learned to shave with help from his Occupational Therapist. Includes interviews with OT, the teen's mother, and explanations of therepeutic choices made. Real Look Autism's high production values make this especially useful.
April 27, 2012: "Opening Doors" from the Southwest Autism Reseearch and Resource Center (SAARC).
A collaborative study by the Urban Land Institute (ULI) Arizona, Southwest Autism Research and Resource Center (SARRC), the Arizona State University (ASU) Stardust Center for Affordable Homes and the Family and the ASU Herberger Institute School of Architecture and Landscape Architecture. The 2010 study focuses on the residential concerns of adults with autism and related disorders and is designed to advance the development of replicable residential models that offer quality, affordable housing options within the fabric of their communities.
April 20, 2012: "My Child is Graduating ... What Next?" from Wrightslaw.
Some updates to the Wrightslaw website on Transition issues. Sign up for a free subscription to "The Special Ed Advocate Newsletter" to be kept updated on important information and issues.
April 13, 2012: Transition Webcasts from the Ohio Center for Autism and Low Incidence.
A unique offering with experts and autism advocates. We highly recommend listening to Gary Tonks talk about Medicaid and Medicaid Waivers, to Gary Iler talk about what the application process for SSI is really like, and to Maureen Iler talk about Community Living Issues.
April 6, 2012: "Carly's Voice" by Arthur Fleischmann with Carly Fleischmann.
An account of raising an autistic daughter who doesn't speak, and who is thought to have intellectual disabilties. But when Carly accesses a computer, she reveals herself to be bright, funny, and articulate.
March 30, 2012: "Roadmap to the Future: Transition into Adulthood with ASD."
From the Thompson Center for Autism and Neurodevelopmental Disorders at the University of Missouri.